ABOUT THE AUTHORS Dr. Shaefer’s involvement with FIMR started in the early 90’s through the Association of SIDS and Infant Mortality Programs (ASIP). This collaboration has resulted in many pub- lications. The annotated bibliography on grief and loss provides FIMR and ASIP members articles to enhance their practice. FIMR: Guide for the Home Interviewer is an indispensable manual for the new home interviewer. The NFIMR/ASIP Bulletins When an Infant Dies: Cross Cultural Expressions of Grief and Loss Vol I, II, III, and IV provide essential information on working with families of different cultures. The Process to Address Disparities in Rates of Sudden Infant Death Syndrome published in Managed Care Interface describes FIMR efforts to implement SIDS risk reduction activities.
A prolific writer on family services, Dr. Shaefer was the senior author and ASIP’s committee chair that developed Sudden Infant Death Syndrome, Standards of Services to Families and The Unexpected Death of an Infant or Child: Standards for Services to Families. These standards have been used to inform state legislation regarding services and provide guidelines as local programs develop services.
As a clinical nurse specialist and then a nursing director, she assisted in developing a system of care to assure that all families receive bereavement services following their infant’s death. The concern was sparked by staff nurses who wanted mothers to have consistent care when faced with the tragedy of their infant’s death. Dr. Shaefer’s research, publications, training programs, and films have helped families and health care professionals learn about coping with an infant’s death.
She was the Director to the Center for Infant and Child Loss at the University of Maryland School of Medicine. As a past president of the Association of SIDS and Infant Mortality Programs, she works at a national level to advocate for bereaved families and the service delivery system. Representing ASIP, she was a member of a team of U.S. SIDS experts invited to Moscow by the Government of the Russian Federation. The group, functioning under the auspices of the Gore-Chernomyrdin Health Committee, identified collaborative strategies for reducing infant mortality and improving infant health outcomes. Dr. Shaefer provided expertise on parent support following infant death.
She represented ASIP at the NIH panels held to determine if the United States would promote placing baby’s on their back to sleep to decrease the risk of Sudden Infant Death Syndrome (SIDS). ASIP is a co-sponsor of the Back to Sleep Campaign with of the American Academy of Pediatrics, the United States Public Health Service, and the SIDS Alliance/First Candle. She also participated in review of media campaign to promote this message. This effort is the most successful public health campaign to decrease infant mortal- ity in the United States.
She provides consultation and authored publications for the National SIDS Resource Center. She also prepared a series of promising practices implemented by SIDS programs to address cultural and linguistic competence at the National Center for Cultural Competence, Georgetown University website.
Dr. Shaefer is an Assistant Professor, Johns Hopkins University School of Nursing (JHU SON). She received her PhD from University of Maryland School of Nursing and her dis- sertation research received the Mary V. Neal Research Award.
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VOICES FROM THE COMMUNITY: CROSS CULTURAL EXPRESSIONS OF GRIEF AT THE LOSS OF AN INFANT
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