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The LimbBo Foundation
Whether it’s the first time or fourth time, one of the most exciting parts of any pregnancy is seeing those fuzzy black and white images of your tiny human wriggling about on the screen at your routine antenatal ultrasound appointments.
Along with giving expectant parents a first peep at the real reason behind those butterflies in mummy’s tummy, they also offer a valuable and detailed insight into how the baby is developing. And while lots of happy, smiling parents-to be leave the clinic feeling relived and reassured that all looks healthy, perhaps elated at finding out the gender of their little prince or princess, there are also those for who no words could ever describe their feeling of complete distress. Numb. Broken. Resentful. Distraught. Apprehensive. And completely thrown and confused by the words the sonographer just said, the words all those sitting nervously in the waiting area dread to hear.
“I’m so sorry. There is something wrong with your baby.”
Halfway through their first pregnancy in 2014, Barnsley couple, Adam and Katie Dengel, were watching in apprehension at their 20-week anomaly scan as the sonographer checked all their unborn baby’s major organs for abnormalities, smiling at the little heartbeat fluttering on the screen. However, within minutes, their bubble burst as panic and concern rippled across the sonographer’s face. As she called for more senior colleagues to double check her findings, the couple were told bluntly that their baby would be born with an underdeveloped forearm.
Amid the confusion and bewilderment, Adam and Katie were ushered into a bereavement room, a black and white leaflet about club hand thrust into their hand and the prospect of a termination offered to them by a consultant who could give no explanation into how this had happened.
The pair chose to pay for a private 3D scan to find out more and discovered the cause was a rare, non-genetic disorder called Amniotic Band Syndrome whereby parts of a developing foetus become entangled in string-like amniotic bands which restricts blood flow, resulting in malformations or defects. Following their initial shock and concern, Adam and Katie chose to continue with the
‘‘The Unlimbited Arm looks so good that we get responses saying they now feel like the cool kids in school ‘cos everyone is so amazed by the design. We’ve even had hand- written letters sent in from the older kids who can now hold a pen in their hand.’’
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aroundtownmagazine.co.uk
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