PATIENT SAFETY Science Minister Chris Skidmore said:
“We will all know someone who has been through the trauma of a devastating illness, and received care and treatment through our brilliant NHS. “The new data hubs announced today have the potential to save millions of people’s lives. They will take the information the NHS has at its fingertips to identify patterns, speed up research and find the treatments we all hope for.
“Backed by £37.5 m of government funding, this is a key part of our commitment to invest at least 2.4% in R&D, the biggest ever boost to R&D funding in UK history and keeping the nation at the forefront of scientific and medical discoveries.” Over 100 organisations from the NHS and universities to charities and technology and pharmaceutical companies across the UK are involved in the hubs. The aim is to bring their collective expertise together to maximise the value of health data research potentially benefiting millions of people across the country. The seven hubs are:
l A cancer hub that aims to transform how cancer data from across the UK can be used to improve patient care, diagnose the disease earlier, and enable people to access innovative new medicines, potentially contributing to saving the lives of 30,000 cancer patients a year
l An eye health hub that will use data and advanced analytics, including artificial
intelligence, to develop new insights in eye disease and how this applies to wider health such as dementia and diabetes
l An inflammatory bowel disease hub that will use data to address the urgent need to better understand why patients with Crohn’s Disease and Ulcerative Colitis respond differently to treatments
l An acute care hub that will use data from community health, the ambulance service and hospitals to enable innovative healthcare companies to develop, test and deliver advances in clinical care
l A clinical trials hub to increase opportunities for patients to participate in clinical trials
l A respiratory hub that aims to improve the lives of people with respiratory conditions, such as asthma and chronic obstructive pulmonary disease (COPD)
l A hub that aims to use real world data to improve understanding of many long-term conditions, starting with Type 2 Diabetes, finding new life saving treatments by using advanced technologies and artificial intelligence, and even preventing them altogether.
According to Professor Andrew Morris, director of Health Data Research UK, creating these hubs and the wider secure infrastructure will, for the first time, give researchers the opportunity to use data at scale to research the genetic, lifestyle and social factors behind many familiar common diseases and identify revealing data trends which may
help with finding cures or treatments. “The UK is home to some of the world’s leading researchers and innovators who have historically struggled to access large scale data about people’s health,” Prof Morris said. “With a clear focus on data security, safety and public involvement, this is an important and exciting next step in the UK’s health data proposition and builds on the fantastic strengths we have across our health service, universities and industry.” Natalie Banner, lead for Understanding
Patient Data, added: “Many people support the use of patient data for research but are understandably nervous about the involvement of commercial organisations. It’s great to see the hubs taking public and patient engagement seriously as they meet this challenge of driving innovation while protecting peoples’ rights and interests over data.” Dr Jonathan Sheffield OBE, CEO, National Institute of Health Research Clinical Research Network (NIHR CRN), concluded: “The National Institute of Health Research (NIHR) CRN funds teams of doctors and nurses to deliver and support patients in clinical trials across the NHS. We welcome any initiative which will improve the speed and efficiency of clinical trials whilst giving patients opportunities to access leading edge treatments. “The NIHR Clinical Research Network is
supporting this service which will speed up the delivery of more studies to patients and improve overall care in the NHS.”
CSJ
cus
30 years’ experience in offering stomised soluttions to supporrt our customers’ patient warming needs.
www.centralmedical.co.uk NOVEMBER 2019
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