DEMENTIA
number is estimated to increase by 17 per cent to 19,473. The age group with the most estimated diagnosis of dementia appears to be 80-84 year olds.
The rates used assume that rate of diagnosis will stay the same for each age band and, therefore, any increases evidenced in the table are due to population growth.
(Note: Due to rounding within the age groups, the sum of the age groups may not equal the Scotland total for the year.)
DEMENTIA
THE SCOTTISH GOVERNMENT’S LATEST REPORT ON DIAGNOSIS RATES FOR DEMENTIA IN SCOTLAND….
A
report commissioned by The Scottish Government from NHS National Services
Scotland’s Information Services Division (NSS ISD) is the government’s attempt to establish an estimated annual dementia diagnosed incident rate for Scotland, which, it hopes, will help to contextualise post-diagnostic performance data.
Improving post-diagnostic support for dementia patients has been a key part of The Scottish Government’s National Dementia Strategies since they were first developed.
Indeed, in Scotland’s National Dementia Strategy (2013-16), the government had set out its commitment ‘to deliver expected rates of dementia diagnosis and by 2015/16, all people newly diagnosed with dementia will have a minimum of a year’s worth of post-diagnostic support coordinated by a link worker, including the building of a person- centred support plan’.
In order to deliver on this, it was clear that the government would need to acquire an estimate of the number
14 - SCOTTISH PHARMACIST
of individuals newly diagnosed with dementia in a given year within each NHS Board.
After stakeholder consultation, it was decided to undertake a new approach to determining estimated diagnosis rates of dementia in Scotland. This led to the commissioning of the new ‘Estimated and projected diagnosis rates for dementia in Scotland: 2014- 2020’ report, which has just been published.
The project discovered that, in 2014, there were an estimated 16,712 individuals newly diagnosed with dementia in Scotland. By 2020, this
With diagnosis of dementia rates expected to rise by 17 per cent over the next few years, it’s obvious that multi-disciplinary care in the community and in both primary and secondary care will take on increased significance.
Lorraine Haining, Specialist Nurse Practitioner, Mental Health Directorate at NHS Dumfries and Galloway is a senior and highly experienced mental health nurse in dementia care. Lorraine tells SP about a multi- professional team model which is unique in its approach.
‘The Dementia Specialist Improvement Leads programme is an 18-month programme designed to grow capacity and capability in specialist mental health services to support implementation of Promoting Excellence and the Standards of Care for Dementia in Scotland in these settings. The programme was targeted at participants who had an identified practice development, quality improvement and education role in their Board. It included a number of ‘training for trainers’ programmes including:
• Stress and distress in dementia
• Meeting the needs of people with dementia with complex physical health care needs
• Palliative and end of life care in dementia
• Pharmacological care in dementia • Cognitive stimulation therapy
‘We have introduced three different levels of training: foundation, intermediate and advanced and, so far, we have trained almost one hundred staff (including hospital and community) at foundation level. Different staff groups learning together is something we encourage. That way staff are not working in silos and it ensures we deliver a consistent message around dementia care.
‘The one-day simulation learning events we organised for all staff with support from the University of West of Scotland (UWS) have had the biggest impact in terms of staff experience of dementia. This event includes a thirty- minute simulation experience of what it is like to have a sensory impairment and still carry out basics tasks. These events have helped to shape more positive attitudes towards dementia.
‘At community level, a local charity carried out one-to-one and group consultations with families and service users and they have told us they value the importance of a person-centred approach, a focus on recovery, being able to engage in activities based on personal choice and preference and the telling of (and listening to) ‘Life Stories’ and maintaining connections to their local communities.
‘The project has enabled the voices of patients and carers to make a significant contribution to the way dementia care develops in clinical settings, particularly in regard to personhood, identity and human rights. The views of users and carers have now been incorporated into the development of NHS Dumfries and Galloway’s action plan and, by implication, other local and national initiatives.’ •
Table 1. Estimated and Projected Number of Individuals to be Diagnosed with Dementia in Scotland - 2014 to 2020. Year Total
95% Confidence Intervals (Byar’s Method) Under 60 60-64 65-69 70-74 75 -79 80-84 85-89 90+
2014 16,712 16,078; 17,382 2015 17,097 16,036; 18,220 2016 17,496 16,411; 18,644 2017 17,994 16,879; 19,172 2018 18,489 17,345; 19,697 2019 18,989 17,817; 20,229 2020 19,473 18,271; 20,743
268 268 268 268 268 268 267
343 878 1,742 3,198 4,336 3,699 2,246 344 899 1,766 3,228 4,430 3,812 2,349 348 911 1,818 3,223 4,516 3,945 2,466 356 875 1,972 3,254 4,590 4,106 2,572 364 861 2,058 3,322 4,708 4,232 2,675 372 857 2,117 3,403 4,807 4,356 2,809 381 861 2,170 3,460 4,876 4,503 2,954
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