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NON-FINANCIAL COSTS


SUMMARY:


• IBD causes non-financial costs to individuals who bear the burden of disease and their families, including reduced quality of life, loss of leisure time, and limited choices of career, travel and other personal options.


• Quality of life is most affected by disease activity: individuals with moderate to severe symptoms have the most reduced quality of life. However, even people without symptoms suffer from distress, anxiety, and fear leading to a loss of quality of life.


• CD and UC have a comparable effect in the reduction of quality of life.


• Individuals with IBD have a lower quality of life, compared to the general population, across almost all different dimensions of health. People with moderate to severely active disease have very significantly impaired quality of life, but even those in remission have a quality of life below the population average.


• Adolescents with IBD may be particularly troubled by psychological and behavioural issues related to their IBD and its impact on their quality of life.


• Quality of life can be significantly improved with effective treatment, including both surgery and drug therapy. Treatment-improved quality of life often leads to restored productivity.


• It is difficult to quantify the cost of loss of quality of life but, based on Australian research, the cost of IBD in Canada for loss of quality of life may be more than $4 billion (CAD).


THE IMPACT OF INFLAMMATORY BOWEL DISEASE IN CANADA 68


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