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May 3, 2018 Lyme Disease Anaplasmosis Babesiosis


July 12, 2018 Lyme Disease Anaplasmosis Babesiosis


September 20, 2018 Lyme Disease Anaplasmosis Babesiosis


CONFIRMED NOT A CASE PROBABLE


61 6 2


38 26 8


13 8 3


CONFIRMED NOT A CASE PROBABLE


231 235 31


78


122 29


45 18 5


CONFIRMED NOT A CASE PROBABLE


415 324 80


141 185 45


44 43 10


SUSPECT


335 1 1


SUSPECT


802 5 4


SUSPECT


1520 10 4


TOTAL


447 41 14


TOTAL


1156 380 69


TOTAL


2120 562 139


DATA (SPRING-SUMMER-FALL) REPORTED AND ENTERED INTO THE STATE OF MAINE’S DATABASE, WITH REGARDS TO TICK-BORNE DISEASE


We know that there are variances among patients with symptoms and that, in most cases, co-infections are not ruled in or out and that delayed diagnosis can compli- cate and warrant longer treatment.


With unreliable blood work being done in our primary care doctor’s offi ce, by providers with limited knowledge and experience with tick-borne diseases, I can’t help but wonder what is happening to all those Probable and Suspect cases out there walking around in our community? People thinking that because they tested negative that they are free and clear of the dangers lurking with an undiagnosed infectious dis- ease. People sick without answers or worse yet, misdiagnosed and mistreated. I had four negative tests, dozens of misdiagnoses and treatments that failed and went two years two months before getting a proper diagnosis. It took me that long to fi gure out that I was truly sick and needed to advo- cate for myself. I was not referred to any Lyme specialists because my doctors (using unreliable tests and referring to outdated guidelines) told me that was not what I had. In truth, my body was fi ghting off late stage neurological Lyme complicated by Babesia, Bartonella, RMSF and Erlichiosis while I


listened to specialist after specialist tell me that there was nothing wrong with me. I might have been probable or suspect but the one thing I knew for certain: I was very, very sick and I needed help!


If you or someone that you know is


sick and tested negative, please contact me. I can get you connected to free resources to get a proper diagnosis and get you on the right journey back towards health and wellness.


Paula Jackson Jones is the President of the MLDSE, the Co-Chair of the Access to Care Services and Patient Support subcommittee of the Federal HHS Tick-borne


Disease Working Group, the Maine-partner of the national Lyme Disease Association, member of Maine’s CDC Vector-borne Workgroup and active in Maine’s Lyme leg- islation. You can reach her at paula@mldse. org and visit her website www.mldse.org. See ad on page 26.


Helping you discover what is emerging within you


 Therapist  Spiritual Counselor  Psychosynthesis Coach


Audrey McMorrow, LPC, BCC Sparhawk Mill


81 Bridge Street Yarmouth, ME 207-650-8052


www.vasthorizons.com


“n te wiprn f yu ols lnig h r o en nie o bcm?


I h hseig o or su’ ogns , wo ae yu big ivtd t eo e”


www.EssentialLivingMaine.com 29


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