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Managing the emotional and financial demands of caregiving requires creativity. Here are ideas:
Connect with local support groups. Attend support groups, in person or online, and find out about educational programs they offer, which often include legal and financial advice.
Work with your MS medical team. Although talking about MS and financial help doesn’t come easily, if you let your doctor know that you have a tight budget, he or she can help you find more affordable treatment strategies and advise you on the best ways to get any needed assistive devices, such as canes, walkers, or wheelchairs.
Talk to your employer. About 22 percent of caregivers say they have lost a job because of their caregiving responsibilities, and another 17 percent believe they couldn’t hold down a job. Before you reach this critical stage, talk to your employer about options such as flexible scheduling or working from home.
Reach out to pharmaceutical
CARE E-MAGAZINE: SPRING 2013
companies. MS medications may be expensive, but drug companies often have programs for qualifying families that provide prescription drugs at lower cost.
Take advantage of available programs. Medicare, Medicaid, disability payments, Veterans Administration benefits, and other programs can help offset some costs. Families with children may qualify for programs such as SNAP or free/ reduced school breakfasts and lunch that help reduce the costs of groceries.
Coordinate respite care. Respite care programs provide a break for the caregiver. Check to see what your health insurance benefits provide. Many caregivers can create their own respite care by coordinating with friends and family members who are willing and able to visit for a few hours, days, or weeks.
Budget ahead. Money will be tight, so taking a proactive role in budgeting can help you and your family feel more in control. Try to plan for the long-term. Because MS
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