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Take Charge


One way for kids to become empowered and feel like they are not alone is to be involved in activities with other children with the same chronic illness. It is also important for parents to be with other parents to share resources, information and advice. You cannot be with your child all the


time, and emergency situations may occur. Complications, such as seizures or episodes of hypoglycemia, may happen when least expected. Friends or family need to be aware of what to do. When the diagnosis is new, it takes extra planning to make sure that your child is always with someone who will know what to do in an emergency. Your child should wear an emergency bracelet with the diagnosis in case emergency services need to be called. Kids must understand that even though they adhere to their medical plan, complications happen that may be due to reasons such as growth spurts, underlying infection, increased activity or hormones.


Parents and providers need to be aware of these transitions, as a change may be needed in the medical treatment plan. There may be times when kids feel


frustrated and don’t want to deal with their illness or comply with their treatment plan. They should always know that a family member as well as the school nurse will assist when they ask for help, so they must let their needs and concerns be known. When they are ready to resume responsibility for self-management of their illness, they should be able to resume care, and you need to respect their choices. Raising a child with a chronic illness is


certainly a family affair, and parents need to know how valued they are on a daily basis.


Sheryl Zang, EdD, FNP, CNS-BC, is an Associate Professor at Downstate Medical Center, College of Nursing. A nurse for 38 years, she is presently running groups for diabetic children and teens.


It’s important to keep the lines of communication open with your kids  they are feeling


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