Conclusions and recommendations Continuing with the current approach of mass duplication of information resources on the same topics by many providers is unacceptable and unsustainable, and is unlikely to support a successful self-management approach19
healthcare commissioners and service providers20
, especially given the current financial climate and restraints faced by . We know that the existing duplication is already
causing inconsistencies, potentially reducing patient confidence and jeopardising patients’ ability to effectively self-manage, therefore we endorse the recommendation made recently by MCS12
to have a
nationally driven strategic approach to information provision. There needs to be an open and honest debate between all relevant stakeholders, to identify a way forward. We all have a duty of care to our patients to provide up to date, accurate, good quality, accessible and timely information resources, as part of providing good quality health services to ensure they have a positive experience. Equally, we have a responsibility to ensure both public and charitable funds are utilised appropriately and prudently.
Acknowledgements To Charlotte Beardmore, Director of Professional Policy and the Patient and Public Liaison Group (PPLG) at the Society and College of Radiographers for their comments and support in writing this article.
References 1. Patient Information Forum. Making the case for information. London; 2012. Available online at http://www.
pifonline.org.uk/wp-content/uploads/2013/05/PiF_Report_case_for_Information.pdf (last accessed March 2015). 2. 3.
Department of Health. The Power of Information: Putting all of us in control of the health and care information we need. London: DH; 2012.
National Institute of Health and Care Excellence: Improving support and palliative care for adults with cancer London: NICE; 2004 Available online at
https://www.nice.org.uk/guidance/csgsp (last accessed March 2015).
4. Francis R. Report of the Mid Staffordshire NHS Foundation Trust Public Enquiry. London: HMSO; 2013. 5.
6. 7. 8.
NHS England. The Information Standard. Available online at
http://www.england.nhs.uk/tis/ (last accessed November 2014).
NHS Choices. The Information Prescription Service. Available online at
http://www.nhs.uk/IPG/Pages/ AboutThisService.aspx (last accessed November 2014).
Department of Health. The Accessible Information Standard. Available online at
http://www.england.nhs.uk/ ourwork/patients/accessibleinfo-2/ (last accessed November 2014).
NHS England. Empowering Patients: A discussion event focusing on high quality accessible patient information, shared decision making and wider strategies to improve patients' knowledge, skills and confidence to be active in their care and support. London. Meeting; October 2014. Details of event available online at http://www.events.
england.nhs.uk/all/188 (last accessed March 2015).
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ABOUT THE AUTHORS Sarah James works part-time as Professional Officer in Radiotherapy at the Society and College of Radiographers and part-time as Macmillan Patient Information Lead at the Lynda Jackson Macmillan Centre. Alison Stemp is currently Macmillan Cancer Information & Support Facilitator at Wye Valley NHS Trust. Both are therapeutic radiographers.
.
9.
Department of Health. Cancer patient experience survey 2011/2012. London, DH, 2012. Available online at
https://www.gov
.uk/government/uploads/system/uploads/attachment_data/file/212860/Cancer-Patient- Experience-Survey-National-Report-2011-12.pdf (last accessed March 2015).
10. Department of Health. Radiotherapy patient experience survey. National Report 2013. Available online at
https://www.quality-health.co.uk/resources/surveys/radiotherapy-national-survey/502-radiotherapy-patient- experience-survey-2013-national-report-1/file (last accessed November 2014).
11. T
omlinson M, Samuels L, Murphy T et al. A review of the results from the National Radiotherapy Patient Experience Survey in England. Radiography, 2014; 20, 217-222.
12. Macmillan Cancer Support. Let’s talk about it: Improving information and support for people affected by cancer London: MCS; 2014.
13. McCartney M. Patient information: a stupid system. BMJ, 2013; 347:f4748. 14. Patel K. Getting it right for patients. Imaging and Therapy Practice, 2011; October 15. Department of Health. Health and Social Care Act 2012. London: DH; 2012
, 16-21.
16. Society & College of Radiographers. Summary of interventions for acute radiotherapy-induced skin reactions in cancer patients: a clinical guideline recommended for use by The Society and College of Radiographers. London: SCoR; 2011.
17. British Association of Dermatologists. Patient information leaflets. Available online at
http://www.bad.org.uk/ for-the-public/patient-information-leaflets (last accessed November 2014).
18. Chartered Society of Physiotherapy. Physiotherapy works – the evidence. Available online at
http://www.csp.org. uk/professional-union/practice/your-business/evidence-base/physiotherapy-works (last accessed November 2014).
19. Department of Health. Living with and beyond cancer: taking action to improve outcomes London: DH; 2013.
20. Department of Health. The NHS quality, innovation, productivity and prevention challenge: an introduction for clinicians. London: DH; 2010.
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