labor & birth focused care


and what will happen next. Remember that the extra care provided is to ensure that you and your baby have the lowest possible risk for complications and that your healthcare team is prepared for any special circum- stances.


But what do you do with the information that the providers give you? Women share  their baby has problems, they feel very alone.  gone through this experience, and you do not need to go through it alone. Remember: Knowledge is power. Having


  you and your baby. Ask questions of your providers. Ask for their input on reliable resources, either in print or online. You may also want to ask about live or online support groups that may be appropriate. Many hospitals have neonatal or pediatric


palliative providers. Palliative care for babies and children does not necessarily indicate


that they have a life-threatening condition; palliative care also becomes involved when children have life-altering conditions, such  special medical care, psychological or social support or other interventions that will enable your baby to be the best she can be. Palliative care providers can work with you from the time of diagnosis of an anticipated issue with your baby and can be the source  support before, during and after delivery. Family and friends may provide addi-


tional layers of care and support and may be a very important part of your circle of support. Some mothers who are expecting  ask how to discuss the information their provider has given them with family, friends  with your partner which family members and which friends will be informed and exactly what information you will share with them. Preparing ahead of time will allow you to become more comfortable when asked the hard, but well-intentioned, questions about how you and your baby are doing. Healthcare providers, support groups,


family, friends and coworkers comprise the team that can help support you and your  the conversations with each can be painful, these caring individuals can also provide the support you need. There is no right or wrong way to work


through this challenging time. There is no script. Listen to those you trust, those who have gone through this before you and those who care. Even though it may not feel like it in the beginning, you will get through this.


Kathy Davis, PhD, is Director, Perinatal Sup- port Program, University of Kansas Medical Center, Kansas City, KS.


www.youandyourfamily.com


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