PATI ENT SAFE T Y
demonstrated the willingness that many members of the public are happy to be involved. The app is helping to inform decisions being made on how and where steps need to be taken to reduce transmission rates6
successful measures for preventing the spread of the virus.
The app is a good demonstration of how information can be shared with stakeholders. All the information gathered is anonymised and shared with users in colourful charts and graphs which are updated daily, providing a powerful incentive for them to continue to contribute. The app has led to new symptoms being identified7
and
could play a key role in supporting the development of more effective treatments that reduce the severity of the virus and cut patient recovery times. All these examples demonstrate the importance of the open sharing of data as the greatest incentive for encouraging people to contribute to and engage with any database or registry.
Working together to improve lives Patchy information will be the downfall of any well-intentioned registry. A system that only includes some surgeons, or public and not private healthcare settings, risks missing important warning signs that a certain implant is failing or is causing complications in specific patient groups. The best registries are those that require all practitioners in all hospitals to contribute – the more comprehensive the information available, the more effective a registry will be. But it is essential that the information being collected is scrutinised, analysed, and acted upon. This will help patients to feel more involved in the process and enable the health service to make the critical link
and identify the most
The best registries are those that require all practitioners in all hospitals to contribute – the more comprehensive the information available, the more effective a registry will be.
between the quality of care provided, the latest research on successful treatment pathways and the actual outcomes patients experience. As the dust settles on the publication of the Cumberlege review, it is this insight that will help all those who work within our NHS to better protect patients and support them in delivering the quality of care they have come to expect, whatever the challenges ahead.
References 1 Cumberlege, J, First Do No Harm, The report of the Independent Medicines and Medical Devices Safety Review,
https://www.immdsreview.org.uk/ downloads/IMMDSReview_Web.pdf, 8 July 2020
2 Joint Council of Cosmetic Practitioners (JCCP),
https://www.jccp.org.uk
3 UK Non-surgical cosmetic treatments could grow to £3bn, International Medical Travel Journal, https://
www.imtj.com/news/uk-non-surgical-cosmetic- treatments-could-grow-3bn 24 December 2018
4 JCCP/CPSA Code of Practice, https://www.jccp.
org.uk/PractitionersAndClinics/jccp-cpsa-code-of- practice
5 Press release, COVID Symptom Study, The COVID-19 symptom reporting app reaches 4 million contributors,
https://covid.joinzoe.com/post/4- million July 17, 2020
6 Press release, COVID Symptom Study, Rapid rise in cases takes numbers back to May levels in just 3 weeks,
https://covid.joinzoe.com/post/incidence- update-sept-25 September 25, 2020
58 l
WWW.CLINICALSERVICESJOURNAL.COM About the author
Richard Armstrong is head of health registries at Northgate Public Services. He has supported the work of health registries around the world, including the National Joint Registry (NJR), EUROSPINE’s Spine Tango, JCCP and the Indian Joint Registry.
MARCH 2021
7 Press release, COVID Symptom Study, Surprising research findings on the early symptoms of COVID-19,
https://covid.joinzoe.com/post/early- covid-signs, September 23, 2020
CSJ
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