Patient safety
Evidence exists that people with a learning disability experience health inequities. Long-held societal beliefs about the abilities of people with a learning disability may influence the provision of and decisions made around their care. Clare Crowley, Senior Safety Investigator
said: “In the UK, it is estimated over 900,000 adults have a learning disability. Each person with a learning disability will have their own experiences, their own way to communicate and will come into hospital with unique needs, which will require a tailored set of reasonable adjustments. “What our investigation shows is that where
systems and processes do not support staff overall, an ‘unrealistic reliance’ is placed on individual staff members working within hospital wards. We heard from staff that they are trying their best for their patients but don’t always have the time to meet needs in the way they would like and are not always equipped with the specialist skills and knowledge they need to assess and care for people with a learning disability. “The reference case we looked at and the
conversations we had with those who have lived experience highlight just how important person-centered care is. If needs are not met, it can cause distress and confusion for the patient and their families and carers, and raises the risk of poor health outcomes and in the worst cases, harm. The recommendations we have made are aimed at reducing the safety risks, tackling inequity in care, and supporting the delivery of safe care to people who may be at their most vulnerable.”
CSJ
Suggested actions for Integrated Care Boards (ICBs)
HSSIB suggests that integrated care boards work with acute hospitals to share good practice and assure they meet the national learning disability improvement standards. HSSIB also calls for integrated care boards
to include learning disability liaison provision in strategic workforce plans for acute hospitals within their geographical area. This is to help
support the delivery of equitable care to people with a learning disability. Integrated care boards should also develop and use communities of practice (‘networks’) for acute learning disability staff across the integrated care system area, with the aim of providing peer support and sharing learning to support service improvement. Visit:
www.hssib.org.uk
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January 2024 I
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