avoid penalties. If CMS begins pay- ing for procedures performed at out- patient facilities, AJRR’s Level III patient-reported outcome data collec- tion will benefit ASCs that perform hip and knee replacements. Addi- tionally, surgeons who participate in quality initiatives like Meaningful Use and PQRS (soon to be replaced by Medicare Access and CHIP Reauthorization Act of 2015-Merit- Based Incentive Payment System or MACRA-MIPS) can also benefit from registry participation.

Performance Reports: A feature that many registries possess is the abil- ity to generate performance reports using the data from participating institutions. With all of the data that these institutions receive from their patients, it might be a difficult task to narrow down what they are spe- cifically looking for. Performance reports can pinpoint a great deal of specific information, such as pro- cedure count, PROs and medical device manufacturers.

Support Network: Since clinical data registries function as a way to improve patient care, many see the value in creating user groups for the surgeons and other health care employees that utilize them. These groups act as a network, unifying professionals across the state and country. Members share registry best practices and are often given the opportunity to help shape the regis- try community through their insights and contributions.

Security: Clinical data registries apply industrywide best security practices when it comes to the integrity and safe- guarding of their sensitive informa- tion. Participating surgery centers can be confident in knowing that registries have employed internal risk manage- ment practices to ensure the confiden- tiality, integrity and availability of data. Many registries are Health Insurance

Currently, one of the best ways to collect health care data is with a clinical data registry.”

— Erik Michalesko American Joint Replacement Registry

Portability and Accountability Act of 1996 (HIPAA) compliant and collect PHI under HIPAA Privacy and Secu- rity rules. Also, in the case of medi- cal device problems, registries are able to issue warnings to participants if devices are recalled. Patient safety is of the utmost importance.

Research: Research is another valu- able way that registries can be used. Registry research can lead to medi- cal discoveries and reveal successful surgical techniques.

7. Examples of National Registries American registries expand over count- less specialties and fields. Some of the most prominent are the AJRR, Intelli- gent Research in Sight (IRIS) Registry and National Cardiovascular Data Reg- istry (NCDR). Groups like the National Quality Registry Network (NQRN), cre- ated by the American Medical Associa- tion (AMA) in 2011, are voluntary net- works of registry stewards and other stakeholders interested in advancing the development and use of registries to evaluate and improve patient outcomes. The AMA leads evaluations of regis- tries on behalf of the NQRN regarding the operations and sustainability of exist- ing registries and other useful projects.

Erik Michalesko is the marketing and communications specialist at the American Joint Replacement Registry in Rosemont, Illinois. Write him at

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