PALLIATIVE CARE
Live-in care is suitable for people at different stages of their adult life, enabling them to continue living comfortably at home with the support they need to properly manage their condition or disability. This choice is also extended to those who have been diagnosed with terminal conditions.
End-of-life care delivered in the home can help a person find peace, and achieve their goal of staying in their own environment. The assistance provided by live-in carers during these difficult times is of high value and being able to make a difference at a time like this for a family is very special.
As palliative care differs from companionship or condition management care, we have outlined ways to prepare for and deliver a compassionate and supportive service to clients at end of life.
END-OF-LIFE CARE TRAINING The prospect of providing care to a person reaching the end of
their life can initially seem daunting, however, good training and support will help you develop the knowledge and skills needed to confidently and effectively provide palliative care.
During end-of-life care training, you'll discover how to provide holistic care for people with different terminal conditions, including cancer and dementia; you'll find out how to tend to the medical and emotional needs of the individual; and the best ways to offer invaluable support to their family and loved ones. Training will also prepare you for any challenges you may face and how to respond in emergencies and other situations.
A palliative care module will oſten be taught in conjunction with other live-in care skills during induction training. Further formal qualifications can be sought to extend your knowledge and expertise in the end-of-life care field – these courses can be provided by your employer or attainted independently.
COMPASSIONATE CARE A carer should provide a service that is compassionate, with
the person's dignity at the forefront, and these fundamentals should be followed through to the end of life.
A person may go through emotional, physical and mental changes during the final stages and as a live-in carer, you must be prepared to be flexible in your approach. Providing compassionate care does not always mean avoiding the fact of death, but rather being completely understanding, sensitive and responsive to the person's and family's wishes and emotions, respecting their privacy and offering reassurance when appropriate.
Although reaching the end of their life, the person may still require assistance with aspects of personal care, this can include help with going to the bathroom, bathing and dressing and, in some instances, the administration of medication for pain relief and management. Staying on top of these duties will help the person remain comfortable during this period. This is essential for mental and emotional wellbeing as well as physical contentment.
The stage at which the person who has been diagnosed with a terminal condition receives care does differ. You may have a client with very short or longer life expectancy. A tailored end- of-life care plan will be developed to ensure day-to-day needs are met as the person progresses, and to also help your client remain as active and social as they possibly can be throughout different stages of their progression.
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Although it is an emotionally tumultuous time for the person and their family, it is important that you remain calm and professional, encouraging peace by continuing to carry out all your duties including housekeeping, liaising with nurses and other healthcare professionals.
SUPPORT FOR FAMILY MEMBERS End-of-life care at home means a person is able to be around
their loved ones without restrictions such as visiting hours. Because of this, it is oſten the case that you will have regular interaction with the friends and families of your client.
It is important to recognise that this is a challenging and upsetting time for them. End-of-life care is all-encompassing, this means you will also be there to provide a support system for all those concerned.
“A carer should provide a service that is compassionate, with the person's dignity at the forefront, and these fundamentals should be followed through to the end of life.”
Support to a person's loved ones can be provided in a variety of ways, this includes:
Emotional Support - Being there for the family to talk about any emotions, worries, and concerns they may have.
Practical Support - Taking responsibility for domestic duties such as caring for pets, cooking and cleaning. Giving the family the greatest opportunity to spend as much time with their loved one without distractions.
It's unlikely that the family members of the person will be able to be home at all times during the day, simply keeping family and friends updated can help reduce stress and provide some peace of mind during the difficult period.
SUPPORT FOR LIVE-IN CARERS In order to provide the best end-of-life care, it is essential that
your own personal wellbeing is maintained. Live-in carers are typically resilient and able to deal with the emotional stresses and challenges of end of life care, however, the support services offered by your employers are there to be taken advantage of if ever needed. A carer should not hesitate to seek guidance or express any concerns they may have. Maintaining a healthy work-life balance by selecting a flexible rota pattern can also go a long way in providing adequate time off for you to mentally and physically recuperate.
End-of-life care is designed to provide physical care for comfort and dignity as well as a strong and reliable support network for family and friends. As a live-in palliative carer, you will be assisting a person in their choice to live out their final weeks and days in a safe and comfortable environment, surrounded by happy memories, sentimental possessions, and their loved ones.
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