FUNDRAISING Thank you for having your say


Last issue we included a special survey to ask for your thoughts about Your Impact. And we’re delighted to say that we received hundreds of responses.


We’re even more delighted to tell you that 98% of people who responded told us they like Your Impact, with as many saying they found it enjoyable to read.


Naturally, we try to cram as much as we can into these four pages. And you might not be surprised to learn that research came top of the list for what readers consider most important.


In response, you’ll notice a distinct research theme across this issue.


We want to thank everyone who took the time to complete our survey and share their thoughts. Your input will help us shape future issues of Your Impact.


If you ever want to share your thoughts about Your Impact, or you have an idea for something you’d love to see featured, we’re just an email away. Get in touch at yourimpact@mndassociation.org – we’d love to hear from you.


Running for Rob – and all affected by MND


Legacy events


to remember… We’re immensely proud to say that the MND Association reached the finals of the Smee & Ford Legacy Giving Awards, in recognition of the high quality of our legacy events.


Gifts left in people’s Wills contribute up to a third of the income we receive to spend on research – and all our other work each year. We’re so grateful for this. We know just how significant a gesture it is when someone includes the MND Association in their Will, so we make our legacy events as special as we can. It’s wonderful that’s been recognised.


The third Rob Burrow Leeds Marathon took place on the 11th of May. It saw over 14,000 runners take on a half or full marathon through the city’s streets. Of those, 1,167 came together in memory of Rob and their own loved ones to raise money to help fight MND.


Those runners have raised £574,000 between them so far. Thank you to all the runners, sponsors and supporters.


“Jean’s loss was huge for us all, but


we’ll keep going until there’s a cure.” Bekah Greaves, who ran in memory of her mother-in-law.


Places for next year’s run are open now. If you’re interested in taking part in 2026, click here to find out more.


Sarah’s father-in-law Barry recently lost his life to MND. A much loved man locally, when Sarah and her husband Aaron arranged a charity day at their local pub last summer, hundreds of people came to do their bit to help fight MND.


Sarah explained how the amazing day went:


Our legacy events take in talks from leading MND researchers, interactive sessions and even lab tours. There’s even lunch provided and the chance for supporters to meet the researchers leading the fight against MND. They’re an incredible way to get inside what we’re doing – and why.


If you’ve ever thought about including a gift in your own Will, we’d love to meet you at one of our upcoming events. Why not come along and see what all the award-worthy fuss is about?


Click here to find a legacy event near you. Raising a glass to Barry(and over £7,000)


“The pub was absolutely packed. There were hundreds there, many we knew and many we didn’t. We had a tombola, a raffle and an auction. We also had an ice-cream van, a face painter, a DJ and a singer. We raised over £7,000 with Gift Aid. Barry was overwhelmed by the support that was shown.”


There’s a way to raise money to fight MND for everyone, whatever your age or ability. Click here to find yours.


Registered Charity No. 294354 © MND Association 2025 Your Impact 25JL


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