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southwalesargus.co.uk Friday, May 23, 2014
Charity event for the totwho doesn’t grow
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School report celebrated
Newport primary school celebrates “good” Estyn report with “excellent” prospects for im- provement - page 2
No Heartbreak Hotel for winner
TORFAEN’S very own Elvis tribute act takes the title of Best Welsh Elvis for third year running - page 7
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STILL SMILING: Kara-Jay Horton, three, from Newport who suffers from a rare condition called Turners Syndrome.
A NEWPORT tot, who was born with a rare condition which means she has only one Xchromosome, is facing years of injections in order to grow. Three-year-old Kara-Jay Horton, of Beechwood, was born with Turner Syndrome, a condition which affects just one in every 2,000 baby girls. Kara-Jay was diagnosed with
the condition last September after parents, full-time mum Kelly, and dad Clinton Horton, an Elvis tribute artist, became concerned she wasn’t develop- ing at a normal rate. Following a trip to the doc-
tor they discovered Kara-Jay had the genetic condition that only affects females. Caused by an abnormal sex chromosome, instead of hav-
By Sophie Brownson 01633 777247
sbr@gwent-wales.co.uk Twitter@ArgusSBrownson
ing an XX chromosome, Kara- Jay has only one X chromo- some, leading to problems which include reduced and delayed growth. Mum Kelly said: “She will
have tohave growth hormones injected every day for the next 15 years and she won’t enter puberty on her own so when she enters that stage she will have to have a different set of hormone injections. “As a result of Turner Syn- drome she is infertile and she also has lots of other health problems such as duplex kid-
neys, which means she has three kidneys –and glue ear which affects her hearing, which is sensitive and she doesn’t like loud noises.” Mrs Horton, 28, is hoping to raise awareness of the con- dition through a family fun day event next month after only hearing of the condition when her own daughter was diagnosed. She said: “Kara-Jay has learning difficulties and suf- fers from a lack of special awareness. Her speech is also delayed.” In the next month or so the
growth hormone injections will begin and her parents plan to incorporate them in to the bedtime routine. “We are trying to mimic the
growth process,” Mrs Horton added. But, despite her problems, Kara-Jay is luckier than most, as typically sufferers of Turner Syndrome have physi- cal features such as a webbed neck and a lowhairline,which acts as diagnosis indicators. Her family will hold a fun
day on June 21 from 12pm to 4pm at the St Patrick’s Social Cub, Cromwell Road, New- port, to raise awareness of Turner Syndrome and money for the only charity in the UK which helps those affected, The Turner Syndrome Sup- port Society. The event is open to all and will feature live entertain- ment, a disco, face painting and a raffle. Free entry.
Newmayor takes up chains of ofice
AMID pomp and pageantry senior Tory councillor Mat- thew Evans became mayor of Newport for the next 12 months at a ceremony held in the civic centre on Tuesday. The former council leader,
who has given up his lead- ership of the Conservative group for the role, announced the mayor’s charities for this year as Teenage Cancer Trust and Newport Sea Cadets.
Tory councillor for Lang- stone David Atwell and his wife Carole Atwell were ap- pointed as deputy mayor and mayoress. Labour councillor Cliff Sull-
er arrived in robes and chains for the smartly dressed gath- ering, flanked by council chief executive Will Godfrey who had donned a wig and gown.
Labour council leader Bob
Bright formally proposed Cllr Evans as mayor, acknowledg- ing the former council lead- er’s work on the city centre redevelopment project during the pre-2012 Tory/Lib Dem coalition. He and Cllr David Fou-
weather, who seconded the motion, both joked about Cllr Evans’ enthusiasm for the #WineWednesday phenom- enon on the social network
Twitter – with Cllr Fouweath- er saying Cllr Evans would have to put it on hold. Cllr Suller then exchanged
the robes and chains with the newly appointed mayor, whose wife Tina Hatton- Evans was also appointed as mayoress at the meeting, be- fore the senior Tory council- lor moved a vote of thanks for the outgoing mayor for a “job well done.”
southwalesargus.co.uk
Win your local hero the recognition they deserve
DO YOU know someone a community hero? Your local police service is looking to reward people who help them keep the peace and make communities safer and happier places to live. Last year, the award went to Cwmbran woman, Sue Goult, who started a campaign to tackle anti-social behaviour in her neighbourhood. This year the force has a new
award, the Young and Unsung prize, for under 18s who are making a difference. There is also a third award
for organisations working in partnership with the police. To nominate, email awards@
gwent.pnn.police.uk or con- tact Ms Quartermaine or Ms Foley on 01633 838111. The ceremony takes place
on June 30, at Christchurch, Newport.
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