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Summer 2020


Thanks for still being there forme


When the coronavirus crisis first began, the needs of vulnerable peoplewith MNDlikeNicolawere at risk of being overlooked. But thanks to your support, a nationwide effort to help soon got underway.HereNicola talks about livingwithMNDunder lockdown and what itmeans to have your support in‘a time of considerable challenge’.


“When the crisis first struck,wewere supposed to bemoving to a newhouse, onewhere I’d find it easier to get around. We had offers on our place and then, bang – everything stopped.


“Iwas perplexed as towhy the government didn’t classify those of us


livingwithMNDas‘extremely vulnerable’. Itmade the first fewweeks of lockdown a time of considerable challenge.My husband and Iwere both shielding, he has type 1 diabetes, andwewere concerned that he’d have to go out to pick upmedicine and supplies andmight catch the virus and bring it home tome.


“But theMND Association soon came to the rescue there. They gave us the advice we needed to self-register as ‘extremely vulnerable’and qualify for priority slots for supermarket deliveries. Thatwas a huge relief to us both.


“Fromthe start of thiswhole lockdown process, I’ve feltwell-supported by the


Eddie Redmayne supports


our latest campaign (see page 4)


MND Association. Alongside, I’ve continued to receive excellent support frommy localMND Care Centre – they’ve kept in touch over the phone. I’ve tried to domy bit too, carrying on with theMND research I’minvolved with, such as the COMMEND project looking at helping people copewith a MND diagnosis. The researchers have been powering through all this!


“Iwant to give a huge thanks to everyone at theMND Association for consistently being there for us. They’ve helped us through these uncharted waters. And to everyonewho’s donated to help people likeme, I’d like to simply say – THANK YOU!”


Thank you for helpingmake sure peoplewithMNDhaven’t been abandoned during lockdown.


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