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NMC NEWS The Power of NMC!


Winter 2015


Hello and welcome to your winter NMC News!


After a busy summer with so many activities, adventures and experiences – NMC’s supporters have wing walked, conquered mountain ranges and romped through mud to raise funds for NMC!


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here’s something seemingly intangible about NMC. There’s a “feel” and a positive atmosphere that rubs off on people. To walk into NMC, to hear the laughter, banter and chat is an immediately warm and welcoming thing.


So many people who come through our door are doing so in trepidation or anxiety. Many coming for the first time fear they will encounter a cool clinical


environment. Often previous experiences relating to their


condition have involved visits to hospitals. Many are anxious about meeting others with the same condition for the first time in their lives.


The NMC turns out to be the polar opposite of what’s expected. Worries quickly dissipate. Our warm welcoming atmosphere kicks in and people seem to begin to relax and feel at ease.


An individual reflecting on how


they’d felt before visiting NMC on a regular basis commented that they had lived their lives believing they were the only person


whose skin was covered in purple spots. They came to NMC and found a whole world of people covered in purple spots. They were suddenly “normal” for the first time and breathed a huge sigh of relief.


Another famous NMC service quote


was that “The NMC is a place where you can hang your disability on a peg at the front door”.


These quotes give a flavour of an extraordinary place.


NMC is a catalyst and enabler for powerful, ongoing and long lasting mutually supportive relationships. NMC is


all about service users sharing expertise and knowledge to help other service users. NMC is all about


Transitions – throughout life. Muscular Dystrophies are conditions that cause repeated transitions in condition.


Those who have successfully (or indeed unsuccessfully) navigated similar Transitions are encouraged to share and support others at NMC. This could be about anything from adaptations to relationships; holiday cottages to driving; moving to wheelchair use or issues around employment. The key is mutual support and not well- meaning professionals preaching at people with disability.


This culture and approach, which we don’t really even think about empowers, builds confidence and provides advice that people can really believe in. This is the Power of NMC!


There are some headlines from NMC’s latest Social Audit which measures the impact our services make on the lives of those accessing our specialist services.


The winter months need not be dull ones, NMC’s events calendar is jam packed. So whether eating, quizzing, dancing or baking is your thing we’ve something to tempt you out of hibernation.


Thank you to everyone who has supported NMC whether you attend an event, challenge yourself, give of your skills or pass on the NMC message - we appreciate all you do.


Lyndsey a


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