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Supporting patients with pulmonary hypertension across Europe “As a rare disease, it is extremely important that people with pulmonary hypertension (PH)


are supported and feel part of a community. Alongside physicians, patient organizations can provide a key source of this support. We would like to encourage you all to inform your patients about the existence of your local PH patient group so that more people with this devastating condition can receive the help they need.” Gerald Fischer, President, PHA Europe


PHA Europe is the umbrella organization representing PH patient associations in 29 countries across Europe.


PHA Europe works together with its members to enhance awareness of PH across Europe, promote optimal standards of care for people living with the condition, enable access to


approved treatments in pulmonary arterial hypertension (PAH) and chronic thromboembolic pulmonary hypertension (CTEPH), and encourage research for new medicines and therapies.


PHA Europe supports PH patient associations in a number of areas, including:


INFORMATION AND EDUCATION


Newsletters and quarterly ‘Mariposa’ journal


Website, Facebook and Twitter pages


Attendance at key scientific and


industry events


PH AWARENESS RAISING


Global awareness campaign for World PH Day, May 5 and a charity collaboration with the Ironman European Tour


WPHD LOGO (type editable) CMYK 5 This eps. logo file is editable.


Once revised this file can be placed into software such as InDesign. For use in Photoshop (e.g. for online use) revise and use as RGB file.


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World Pulmonary Hypertension Day


PH ADVOCACY


White Paper on PH, presented at the European Parliament


Submission of position papers to EU institutions


European Survey findings on the impact of the disease on the lives of patients and carers presented at major medical congresses as a scientific poster


CAPACITY BUILDING


Start-up funds and support for new associations


Staff fellowships for national associations


Training sessions at the Annual General Meeting


Read more about PHA Europe’s activities at www.phaeurope.org


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