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Supporting patients with pulmonary hypertension across Europe “As a rare disease, it is extremely important that people with pulmonary hypertension (PH)

are supported and feel part of a community. Alongside physicians, patient organizations can provide a key source of this support. We would like to encourage you all to inform your patients about the existence of your local PH patient group so that more people with this devastating condition can receive the help they need.” Gerald Fischer, President, PHA Europe

PHA Europe is the umbrella organization representing PH patient associations in 29 countries across Europe.

PHA Europe works together with its members to enhance awareness of PH across Europe, promote optimal standards of care for people living with the condition, enable access to

approved treatments in pulmonary arterial hypertension (PAH) and chronic thromboembolic pulmonary hypertension (CTEPH), and encourage research for new medicines and therapies.

PHA Europe supports PH patient associations in a number of areas, including:


Newsletters and quarterly ‘Mariposa’ journal

Website, Facebook and Twitter pages

Attendance at key scientific and

industry events


Global awareness campaign for World PH Day, May 5 and a charity collaboration with the Ironman European Tour

WPHD LOGO (type editable) CMYK 5 This eps. logo file is editable.

Once revised this file can be placed into software such as InDesign. For use in Photoshop (e.g. for online use) revise and use as RGB file.


World Pulmonary Hypertension Day


White Paper on PH, presented at the European Parliament

Submission of position papers to EU institutions

European Survey findings on the impact of the disease on the lives of patients and carers presented at major medical congresses as a scientific poster


Start-up funds and support for new associations

Staff fellowships for national associations

Training sessions at the Annual General Meeting

Read more about PHA Europe’s activities at

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