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Rare Cancers


National Institutes of Health Office of Rare Diseases


1-888-205-3223 or 1-888-205-2311 www.rarediseases.info.nih.gov This office answers questions and provides information about research, clinical trials, and patient support groups.


National Organization for Rare Disorders (NORD)


203-797-9590 or 1-800-999-6673 www.rarediseases.org NORD offers a newsletter, an information database, medication assistance, and networking programs.


Sarcoma Chordoma Foundation


919-809-6779 www.chordomafoundation.org This foundation works to improve the lives of chordoma patients by accelerating the development of effective treatments and helping patients get the best care.


Sarcoma Alliance Online Support Groups


415-381-7236 www.sarcomaalliance.org The Sarcoma Alliance provides guidance, education, and support for individuals with sarcoma and their loved ones.


Sarcoma Foundation of America


301-253-8687 www.curesarcoma.org


This foundation raises awareness and funds for research. They provide information about sarcoma, host online forums, and sponsor state chapters.


The Liddy Shriver Sarcoma Initiative


914-762-3251 www.sarcomahelp.org


This group raises research funds and provides information about sarcomas.


Cancer Learning Center Toll-Free Line: 1-888-424-2100 35


CANCER TYPE: Rare Cancers • Sarcoma


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