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One Voice


NMC Physio Client Newsletter Summer 2005 - Edition 01


Welcome!


A big welcome to you all on the first edition of One Voice


Inside this


edition of One Voice


¥ NMC s 15th Birthday


¥ Physio Team Update ¥ Holidays and Days Out ¥ Useful Websites ¥ Holiday Insurance ¥ Tried and Tested ¥ Trial Updates ¥ Do you have a Carer? ¥ Cinema Info ¥ Disabled Persons Railcard


¥ Rotary District 1180 Disabled Games 2005


¥ Dates for your Diary ¥ Are Your Details Correct ¥ A note from the Editor


The purpose of this newsletter is to share our knowledge and experiences. It is for existing, new and potential physio clients alike. It is a new venture and one that I hope will be of benefit to us all. We aim to produce the newsletter twice per year.


We are all at different stages of one type of muscular dystrophy or associated neuromuscular condition or another. Some of us have had a diagnosis since birth whilst others have been only recently diagnosed. Some may not yet have a diagnosis. We represent a wide age group and have different family circumstances. You may be a mother, father, partner, young child or teenager. You may be in employment, education or you may have retired. A carer might help you with daily living.


Whatever your personal circumstances, we all have one thing in common: that we have to live day-to-day with the frustrations that such conditions bring. And the frustrations are endless. I guess we have all acquired an "expert knowledge" about our "own" condition and organisations that can help us with daily living. You may have knowledge of mobility aids, ventila- tion or of hotel and leisure outlets that offer good accessibility for those of us who are less mobile.


We all know, that for most of us, there is no miracle cure and unfortunately that is outside our control. However, with the right support, we as individu- als can enjoy a full and active life. Getting out and about may require greater planning but there are opportunities for us all. Like you, I get moments of frustration with my body s inability to do the things I want it to do and as a result face constant hurdles on a day-to-day basis. Some days it is hard to remain positive. However, knowing that there others out there who are probably feeling just the same can be a source of comfort. If we can make small positive changes to our daily living then this can have a positive effect on our well-being.


So let s share our knowledge and try and make a difference to all our daily lives.


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