Inspiring Innovation: With Adversity Comes Opportunity
13
Planned Giving: An Research Matters! Financial
laboration with the national Standards for
NA
Opportunity to Fortify Your Well-being of Children
Excellence Institute. Educational packets
and other supporting documents are avail-
Organization with Disabilities and their
TIONAL C
able from The Arc of the United States, a na-
Room 304 - (C)
Caregiving Families
tional replication partner. Participants will
hear from chapters who have implemented
Presenter: Mr. Thomas J. Murray, Vice
Room 303 - (C, F, SA)
this program, what the implications have
President, Jeffrey Byrne & Associates, Inc.
Presenter: Dr. Susan Parish, PhD, MSW, been for their chapter, as well as the tools
In times of economic uncertainty, planned
Associate Professor, School of Social Work, available to affiliated chapters through this
giving can provide nonprofits a reliable way
University of North Carolina at Chapel Hill indispensible program.
ONVENTION SCHEDULE - SA
to build endowments and stave off financial
Winner of this year’s Research Matters!
crisis. This workshop and discussion will
Living to Die with Dignity
Award, Dr. Parish will discuss poverty,
explain ways to diversify your fundraising
Room 304 - (C, F)
material hardship and deprivation, and
program with planned giving tools while
out-of-pocket costs of raising children
Presenters: Ms. Sue Walker, Director of
bolstering your donor relationships for
with disabilities in the United States. There
Training, Hammer Residences; and Ms. Cate
future support. Participants will learn: the
will be a particular focus on how similar
Saracen Peters, Program Director, Hammer
role of the Board in planned giving; options
families living in different states fare and
Residences
for securing a fund; what to consider in
how state policies could better support
launching a planned giving program; how
caregiving families.
This important session focuses on the end
to avoid common mistakes; and sample
of life experience from the viewpoint of
goals for a planned giving program.
3:30 p.m. - 5:00 p.m. the individual, their family members and
Breakout Sessions
caregivers. The learner will experience how
to share in one’s end of life story; compas-
Changing the R-Word One
sionately participate in planning a person’s
WALMART LOGO
last days of living; understand how to
State at a Time
support family members, loved ones, and
Walmart Foundation School-
Room 305 (C, F, SA)
staff members in the process and cope with
grief. The presentation provides a touching
to-Community Transition
Presenters: Ms. Jill Egle, Co-Executive
video of the caregiver’s perspective through
TURDA
Project Update
Director, The Arc of Northern VA; Ms. Liz
shared experiences; practical tools for
Weintraub, Council on Quality Leadership;
Room 302 - (C)
dignified end of life decision making and
Mr. Eric Treat, Arkansas People First; and Ms.
planning; and an interactive feature where
Presenter: Ms. Laurie Ertz, Special Projects
Erin Thompson, Virginia People First
the learner can apply end of life prin-
Manager, The Arc of the United States
What started off as a hurtful term, the word
ciples. Presenters will share the priorities,
Y
With the generous support of a $3 million
“retarded” has now laid the foundation for
practicalities, pitfalls, and a purpose-driven
dollar grant from the Walmart Foundation,
a national movement! Hear about efforts to
mission around this critical issue.
The Arc is embarking on a nationwide look
remove the “R” word from state codes. The
at what chapters of The Arc are doing in the
excitement of this movement is that not
Supporting Parents with ID/
area of transition for youth with intellectual
only self-advocates feel the passion, but so
and developmental disabilities from school
do family members and friends. Self-advo-
DD in the Community
to adult community living. Learn how
cates on this panel will discuss their work
Room 303 - (C, F, SA)
chapters will benefit from the creation of a
with legislators to change the words ‘mental
Presenters: Ms. Susan Streeter, Director, Day
national database of programs as a resource
retardation’ to intellectual and develop-
and Clinical Services Programs, Herkimer
for replicating evidence-based “best prac-
mental disability in state codes.
Arc; and Ms. Christine Scheiderich, Parent
tices.” An update of project activities and
sub-grant opportunities for chapters will be
Today, individuals with intellectual dis-
provided.
abilities are supported through a variety
of options and choices. Yet even with all
Disability Policy Collaboration
these alternatives, our field often misses the
Legislative Forum
needs of families where the head of house-
STANDARDS LOGO
hold has an intellectual disability. Parents
Room 305 - (C, F, SA)
with intellectual disabilities and their sup-
Facilitator: Mr. Joe Meadours, Member,
port professionals from New York state will
Disability Policy Collaboration Steering
present their unique approach to solving
Committee
this dilemma. They will share the chal-
Introduction to Standards for lenges and successes of finding appropri-
The Arc’s Legislative Agenda Steering Com-
Excellence
ate curriculum, funding and working with
mittee invites convention participants to
Room 306 & 307 - (C)
community agencies such as Social Services
attend and participate in this annual forum
and schools, as well as describe how they
to help The Arc update its legislative agenda Presenter: Ms. Sarah Cook, Program Associ-
provide structured parenting classes,
for 2010. ate, Chapter Excellence Group, The Arc of the
in-home supports, twenty-four hour staff
United States
availability, and curriculum choices. Join
these presenters in supporting individuals
The Arc of the United States is offering the
in the right to parent!
Standards for Excellence
®
program to affili-
ated state and local chapters through col-
THE ARC OF THE UNITED STATES - 2009 NATIONAL CONVENTION - PITTSBURGH, PENNSYLVANIA
TARGET AUDIENCE LEGEND: C = CHAPTER LEADER SA = SELF-ADVOCATE F = FAMILY
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