10
Inspiring Innovation: With Adversity Comes Opportunity
Fundraising in Challenging Self-Directed Services: Life in How the Brain in Autism
Y Times the Real World Defines the World: A Different
Room 303 – (C) Room 306 & 307 - (F, SA)
Sense of Reality
Presenter: Mr. Thomas Murray, Vice Presenter: Mr. David Taylor, RaceCar
Room 315 - (C, F)
President, Jeffrey Byrne & Associates Waterboy, LLC
Presenter: Dr. Nancy Minshew, Center for Ex-
Drawing on the latest research from the In this presentation, Mr. Taylor will talk cellence in Autism Research, The University
Giving Institute and Giving USA 2009, this about the path which led to a unique pro- of Pittsburgh
presentation will survey major trends in vider in that they offer partially self-direct-
fundraising during 2008 and the first half of ed services. With self-directed services, Mr.
Dr. Minshew will present research evidence
2009. Chapters of The Arc will learn about Taylor has the ability to hire and to fire his
of alterations in information processing at
recommended best-practices, such as own staff – he has more control over his
the cognitive and brain levels that underlie
board recruitment and development, donor life and the services provided to him. Join
the behavioral syndrome of autism. In ad-
stewardship and cultivation of new funders. Mr. Taylor as he shares his belief that self-
dition, she will present studies showing that
Finally, examples of recent successes by directed services are the way to go for those
autism more broadly affects brain function,
human services organizations around the seeking the freedom to live “Life in the Real
accounting for the common co-occurance
country and lessons learned from those World.”
of sensory, motor and learning problems.
organizations will be provided.
Embracing Social Media
3:00 p.m. - 3:45 p.m.
Provider Profiles Room 310 & 311 - (C)
Exhibit Hall Refreshment
Room 304 - (C, F, SA) Break
Presenters: Ms. Stacy Monaghan, Online
Spirit of Pittsburgh Ballroom BC
ONVENTION SCHEDULE - FRIDA
Presenters: Ms. Mary Kay Cunningham, Advocacy Manager, The Arc of the United
Assistant Director of Technical Assistance, States; Mr. Jon Erickson, Ms. Kristin Erickson,
Sponsored by
Institute on Disability, Temple University; Parlerai, Inc.; and Mr. Dave Tinker, Director
Dr. James Lemanowicz, Assistant Director of Development, ACHIEVA/The Arc of Greater
of Research, Institute on Disability, Temple Pittsburgh
University; Dr. Celia Feinstein, Associate
Director, Institute on Disabilities, Temple
This presentation will cover an overview
Prizes will be awarded
TIONAL C University; and Mr. Ed Piccharini, Executive
of the top social media sites (i.e., Twit-
to the winners of
Director
ter, Facebook, YouTube, etc.) and answer
“Pathways to Opportunities”
NA
the question “Why bother?” In addition,
(our Exhibit Hall Game)
This presentation will describe an effort chapters of The Arc will discover how to
in Pennsylvania to collect and publish effectively utilize these marketing venues
starting at 3:30 p.m. Be sure
information about providers for individuals and learn how The Arc of the United States to gather by The Arc’s booth
and families. The system includes provider is taking advantage of social networking to
to learn if you have won! Must
self-description, licensing information, further its mission. Finally, one family’s use
be present to win
Independent Monitoring information, and of social networking and technology to sup-
other quality measures as they become port their daughter’s service coordination
available (e.g. turnover data). In addition, will be highlighted.
individuals and families are provided with a
3:45 p.m. - 5:00 p.m.
list of questions to assist them in choosing Presented by Plenary Session
providers of supports and services. Spirit of Pittsburgh Ballroom A
Texas Microboard Project Federal Entitlement Programs:
Room 305 - (C, F, SA)
The Safety Net
Presenters: Ms. Lisa Rivers, Director of De-
Moderator: Ms. Marty Ford, Director, Legal
velopment; and Ms. Jennifer Mathews, Texas
Advocacy, Disability Policy Collaboration
Microboard Coordinator, The Arc of Texas
Panelists: The Honorable Michael J. Astrue,
This session will provide attendees with
Commissioner, Social Security Administra-
the information necessary to take the first
tion; and Ms. Cindy Mann, JD, Director,
steps in creating their own non-profit and
Center for Medicaid and State Operations
applying to be a Medicaid Waiver provider
or a board using natural supports. Op- Key members of the Obama Administration
portunities and challenges to forming a
INSERT Parlerai Logo here
will discuss, with convention attendees,
Microboard, as well as ways to determine the plans and programs aimed at providing
who is a good candidate will be presented. supports and services to the greater dis-
In addition, sample budgets and available ability community.
community resources to support your
Microboard will be discussed. Award Presentation
The Arc’s Advocacy Matters! Award—SAIL
(Self Advocates In Leadership), Washington
State
THE ARC OF THE UNITED STATES - 2009 NATIONAL CONVENTION - PITTSBURGH, PENNSYLVANIA
TARGET AUDIENCE LEGEND: C = CHAPTER LEADER SA = SELF-ADVOCATE F = FAMILY
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