HEALTH MATTERS 29 update
Palliative Care for All S
ignificant progress has been made on the implementation of the recommendations of the joint HSE/Irish Hospice Foundation Report Palliative Care for All: Integrating Palliative Care into disease management Frameworks.” (2008) The report examined the palliative care needs of people with life-limiting conditions other than cancer and explored how the palliative care model can be extended to these patients within Irish healthcare. Initial focus was on chronic obstructive pulmonary disease (CoPd), heart failure and dementia but its findings are applicable to all life-limiting diseases. It recommended that service models be developed to formalise palliative interventions with the care pathways of people with these diseases.
DEMENTIA AND PALLIATIVE CARE St. joseph’s Residential Facility, Ennis, Clare mental Health Services for Older People, with primary care and Milford Hospice, Limerick. Research Project officer: marissa Butler
marissa.butler@hse.ie
PALLIATIVE CARE AND ADVANCED RESPIRATORY DISEASE St. james’s Hospital, dublin with liberties Primary Care Team and Our Lady’s Hospice. Research Project Officer: Patricia White
pwhite@stjames.ie
Assessment tool developed for patients with chronic illness
A
Following open competition, three two-year research projects began in 2010 to devise, implement and evaluate appropriate palliative care responses within dementia, respiratory and heart failure services, using action research methodology. The anticipated outcomes include: clarity on the nature, potential and timing of palliative interventions; education material for key personnel and information for staff, service users and families; guidelines for introduction of palliative interventions and a framework that has national application to other relevant HSE services.
A part-time research project officer has been appointed to each project. The sites are:
PALLIATIVE CARE AND HEART FAILURE Mater Misericordiae and Connolly Hospitals with Northdoc Primary Care Network and St. Francis Hospice. Research Project Officer: Rosemary McDevitt
rmcdevitt@mater.ie
The projects are co-funded by the Irish Hospice Foundation, the Alzheimer Society of Ireland, the Irish Heart Foundation, the Baxter International Foundation and the Department of Health and Children and are supported by the HSE. Further information can be found on
www.hospice-foundation.ie
+ members of the PARTnERS group, from left to right: mary lee, julianne Ballard, Sue Paffrath, Caroline Walshe, Daragh Rodger, Rosaleen Lillalea and Pamela Henry.
client-centred assessment tool for individuals, 65 years and older, who live with chronic illness has been developed by a group of
nurses interested in health informatics. This tool incorporates a holistic assessment of clients’ needs and abilities using evidence based research. The information gathered allows for essential data to be easily communicated across and between the various agencies along the client’s journey. As clients proceed on their care journey it is envisaged that the tool will facilitate continuity of care and improve communication between care agencies thus improving quality of care. The tool was developed by a group known as PARTNERS (Participatory Action Research to develop nursing and Electronic health Records). The research was brought about through funding from the National Council for Nursing and Midwifery awarded to DCU to educate and train nurses on health informatics and clinical data standards. The Principal Investigator for PARTNERS is Pamela Henry, Lecturer in Nursing and
Health Informatics from the School of Nursing in Dublin City University. The PARTNERS group includes members of the acute primary community and continuing care sector. Other members include an Educational Technologist, from the Irish healthcare consultancy company The Health Partnership, and software developers and engineers engaged in testing European health informatics standards from the Dublin Institute of Technology study EHRland. Factors considered in the development include liaising closely with
EHRland. As a consequence the design brief of the tool is underpinned by health informatics standards and will meet future European Health Record development requirements within Ireland. To date this work has been supported by Dr Katherine Hannah a senior health information management consultant specialising in information integration in healthcare environments and a member of the Canadian Health Infoway Standards Collaborative Steering Committee. For further information visit the PARTNERS website at
www.partnersct.com or email us at
partnersct@me.com
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